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Contains: death in care settings

systemic failuresafeguardingcommunication barriersservice gapsresidential caremedical oversight

Jacqueline's End-of-Life Care Was Found Appropriate.

Based on Victorian Coroner's FindingAI-Assisted Summary

Jacqueline, aged 60, died in Specialist Disability Accommodation following a period of palliative care. Her death was reported to the coroner as being 'in care'.

Jacqueline was born on 12 October 1964. She was diagnosed with Huntington's Disease in 2008. Jacqueline was living in Specialist Disability Accommodation.

From 26 March 2025, she was admitted to a hospital in Geelong. She was transferred to community palliative care on 24 April 2025. Jacqueline was discharged to her Specialist Disability Accommodation dwelling for end-of-life care on 25 April 2025.

On 25 April 2025, at around 11:05 am, a community nurse visited Jacqueline at her accommodation. Jacqueline was observed to be comfortable but unresponsive. She was treated with a Continuous Subcutaneous Infusion and received buprenorphine patch changes and oxygen therapy for comfort.

On 26 April 2025 at 8:15 am, support workers noted that Jacqueline appeared to have died. A community nurse confirmed her death at 8:37 am. Jacqueline died at age 60. A family member visually identified Jacqueline on 28 April 2025. The medical cause of death was aspiration pneumonia in the setting of advanced Huntington's Disease.

I would be interested to understand what processes are in place to support individuals transitioning from hospital to end-of-life care in Specialist Disability Accommodation. The coroner found Jacqueline's care to be reasonable and appropriate and determined not to hold an inquest.

Source: Original Document (opens in new tab) (COR 2025 002259)

Related to:

Huntington's Disease

Topics:

SDASpecialist Disability Accommodationend-of-life-caredisability-supportcoroner's-findingcare-transitionsNDIS

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